Sponsored by the National Center for Advancing Translational Sciences (NCATS) and Clinical Center (CC) at the National Institutes of Health (NIH), Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations under way to address scientific challenges and to advance new treatments.
The event is open to the public, including patients, patient advocates, health care providers, researchers, industry representatives, and government employees. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans.
This year’s event will feature interactive panel discussions and more:
* Shortening the diagnostic odyssey.
* Individualized therapeutic approaches and personalized medicine.
* Expanding and improving access to rare diseases knowledge.
* Sharing rare stories through TED-style talks.
* NIH Town Hall question and answer session.
* NIH clinical trial resources.
* Posters and exhibits by rare disease groups and researchers.
* Artwork and tours of the NIH Clinical Center and National Library of Medicine.